Ikwu ọdịnaya
Isla, onye bi na recessive dystrophic epidermolysis bullosa (RDEB), ya na nkịta ya na-egwuri egwu. Isla, onye bi na recessive dystrophic epidermolysis bullosa (RDEB), ya na nkịta ya na-egwuri egwu.

Anyị bụ DEBRA

DEBRA bụ ụlọ ọrụ nyocha ahụike mba UK yana ọgbakọ nkwado ndị ọrịa maka ndị mmadụ na-enwe ụdị ọnya anụ ahụ na-adịghị ahụkebe, na-egbu mgbu nke ukwuu, ọrịa epidermolysis bullosa (EB) nke a makwaara dị ka 'akpụkpọ anụ nru ububa'.

Nkwado maka Ogbe EB

Achọrọ nlekọta ngwa ngwa? Na mberede kpọọ 999 na maka enweghị ihe mberede kpọtụrụ NHS 111 ma ọ bụ GP gị.

Ozi mberede maka ndị ọrịa EB

 

Ime ụlọ ahịa ọrụ ebere DEBRA na-enye nhọrọ dị egwu nke uwe na ihe ndị ọzọ.

Ụlọ ahịa ọrụ ebere anyị

Site n'ịzụ ahịa n'ụlọ ahịa ọrụ ebere nke DEBRA, ị na-enyere ndị mmadụ na EB aka, yana ịdị mma maka obere akpa gị na ụwa anyị.

N'aka ekpe, onye ntorobịa nwere EB na-enweta nlekọta. N'aka nri, onye ọkà mmụta sayensị na-enyocha ihe nlele n'okpuru microscope. Ederede dị n'etiti na-agụ "Bụrụ ihe dị iche maka EB,"
Mkpesa kacha ọhụrụ

Ị ga BE ihe dị iche maka EB na 2024?

Biko nye onyinye taa ma ọ bụ guzobe ibe ego na-abụ ihe dị iche. Omume ọ bụla na-ewe anyị otu nzọụkwụ nso na ụwa ebe ọ dịghị onye ga-ata ahụhụ na mgbu nke EB.

Ihe omume DEBRA

A na-egosipụta nchịkọta si na "Oge mgbede nke The Skin Diary" kwadoro na tebụl osisi. Obere karama na-adaba n'ihe njide n'akụkụ ihe abụọ nwere igbe.

Otu mgbede nke The Skin Diary 2025 kwadoro

A na-akpọ gị òkù ka ị bịa ná mgbede pụrụ iche lekwasịrị anya n'ịka nká akpụkpọ ahụ, ịdị mma, na nlekọta onwe onye, ​​nke The Skin Diary kwadoro ya na mmekorita ya na DEBRA, ọrụ ebere raara onwe ya nye ịkwado ndị mmadụ. Epidermolysis bullosa (EB).

Nweta nghọta gbasara ịka nká akpụkpọ, mmetụta nke menopause, yana otu esi eme ka akpụkpọ ahụ dị mma n'oge ọ bụla. Ị ga-enwekwa ohere ige ntị isi okwu mkpirisi na ahụike anụ ahụ sitere n'aka ndị ọkachamara na UK.

 

Debe ebe gị!

 

Mụtakwuo
David Williams sitere na DEBRA EB Community Support Team, na-anabata nnọkọ otu ụmụ nwoke na ngwụcha izu nke ndị otu 2024.

Otu ndị nwoke DEBRA - Nọvemba 12

Anyị maara site n'ịgwa ndị otu anyị okwu na ụmụ nwoke na-esiri ike mgbe ụfọdụ ikwu banyere mmetụta ha na ịchọta ohere iji ...
Mụtakwuo
Obere ụgbọ ala sitere na Loch Ness Classic Car Tour na-anya n'okporo ụzọ ọdọ mmiri nwere osisi na ugwu dị n'azụ.

Njem ụgbọ ala Loch Ness Classic

Njem njem ụgbọ ala Loch Ness Classic Saturday 7th June 2025, Malite na imecha na Inverness, ụzọ njegharị anyị na-ewega gị n'ụfọdụ echiche na-adọrọ adọrọ nke ugwu.

 

Debanye aha taa!

Mụtakwuo

Akụkọ kacha ọhụrụ & blọọgụ sitere na DEBRA

Ahịhịa na-acha anụnụ anụnụ nwere "NHS" na mkpụrụedemede ọcha, etinyere n'okirikiri na-acha anụnụ anụnụ.

DEBRA na NHS England na-emekọrịta ihe iji ghọta nke ọma epidermolysis bullosa (EB)

Mụtakwuo
Ihe mkpuchi ihu nke mbipụta mgbụsị akwụkwọ nke 2024 nke EB, na-egosipụta foto ezinụlọ bi na EB Simplex.

Ihe EB – Mgbụsị akwụkwọ 2024 apụtala ugbu a!

Mụtakwuo
Nlele ikuku nke Weymouth White Holiday Home dị na Dorset, nke dị n'ime obodo dị n'ụsọ oké osimiri nwere ndị njem n'akụkụ oke osimiri nwere aja na oke osimiri na-acha anụnụ anụnụ n'okpuru mbara igwe doro anya. Enwere ike ịhụ ugwu ugwu na ahịhịa ndụ n'azụ.

Ntinye akwụkwọ ezumike 2025 mepere ndị otu DEBRA UK ugbu a!

Mụtakwuo
Chọrọ isonye na obodo?

Soro n’otu  

Anyị nwere otu raara onwe ya nye iji kwado ndị mmadụ bi na EB site n'inye ozi na ndụmọdụ gbakwunyere uru, nkwado ego na nke mmetụta uche. Ịbụ onye otu na-enyekwa ohere iji jikọọ na ndị ọzọ bi na EB, gaa mmemme ọkachamara na inye aka na ịkwalite mmata na ịkwalite nka na EB.
Tinye n'ọrụ taa